Agenda:

  • Welcome
  • Center Sharing, Dr. Smego, Utah Children’s Intermountain Health
  • Group Discussion

Center Sharing:

  • Started with no formal process
    • Team formed to include endos, fellows, nurse care coordinator, RN manager, CDCES etc..
    • Used Fishbone to identify common barriers
    • Created Key Driver Diagram to find solutions to the barriers
    • Process Map created to transition process
    • Current PDSA is to establish a transition skills checklist
  • “Go and try approach from peds to adult”
    • Allows patients to go and try and adult provider and if it does not click they can come back for supplies and care until they find a new fit
    • Keep an up to date provider list of providers in state and neighboring regions
  • Tracking month by month data
    • Anytime seen in pediatric clinic, count restarts

Group Discussion:

  • Hopkins Transition Event:
    • Every spring 2 hours on Sunday, virtually
    • 1 hour of rapid fire talks
      • Nurse on prescriptions
      • Doctor on difference between peds and adult
      • Getting accommodations
      • Communication with parents
      • How to eat in dining halls
      • Substances in college
    • 1 hour panel discussion
      • Graduated patients share experiences and helpful tips
        • Patients in college, workforce, etc
      • Seeing patients for longer:
        • What do you do for patients in college?
          • Telehealth for states licensed
          • Switch to every 6 months
          • Education session scheduled for group visits when a lot of the patients come home for college
          • E-visit is a great option for any state
        • Patients who get married?
          • Pregnancy is an automatic referral to adult care, MFM
          • Pregnancy Resource, CCHMC
          • Have had some young moms return to peds care with infants
          • NYU LI: recently had a adolescent patient who pregnancy but due to hospital policy, worked with MFM, and adult and now coming up with policy on how to care
        • How to navigate post 18 year old parents for refills:
          • Advocating for patients to take over this responsibility of care, in transition policy
            • Can denote in EPIC the policy

Next Steps:

  • Thank you to those adults who have expressed interest in chairing the group. We are reviewing these requests and will reach out soon.
  • If your center is interested in sharing on the next call, please email Holly at hhardison@t1dexchange.org or qi@t1dexchange.org to let us know