Welcome and introductions
- Welcome to our new chair! Stephanie Ogburn, BSN, RN, CDCES, LSSGB, is the Diabetes Education Program Coordinator and diabetes educator at Cook Children’s in Fort Worth, Texas. Stephanie transitioned to the pediatric population in 2015 following three years of experience as a diabetes educator in an adult clinical setting.
Reference guides - Incorporating feedback
- Hyper and Hypo symptoms
- Amy Ohmer will share more info on the Diabetes Emoticon App
- CGM, Pump, and Glucagon Definitions
- Minor edits made, highlight the function of each device
- Add in short definition for glucagon “emergency medication to quickly raise blood glucose”
- More info on CGM and Pumps
- Reviewed ADCES and AACE websites
- Decision to use the DiabetesWise website for glucose monitoring and insulin delivery: Device Finder » DiabetesWise
- Include QR codes
- Accessibility and Language Access
- Discussed accessibility icons including the Google Translate app icon
- Options to increase font size or enable dictation
- Claire will work with the T1DX marketing team to see if there is something available
ADCES 2026 presentation
- Claire will be presenting at ADCES this year: Exploring the Emotional Impact of Clinical Encounters Among People Living with T1D
- Presenters: Claire Rainey, BA; Christie Beatson, MS, RD, CDCES
- Claire went over her presentation and receive positive/encouraging feedback from committee members
- Please email claire crainey@t1dexchange.org if any questions or feedback comes up
Discussion on capturing PwD feedback
- Capturing PWD feedback
- Ideas for guest speakers, materials, etc.
- How can we gather and redistribute feedback among the entire collaborative without asking too much of PwD
- Ideas
- Advisory councils
- Guest attendance at advisories
- Polls to registry participants
- Collaboration with the Health Equity Advancement Lab (HEAL) Committee