Ori made introductions and reviewed the data reporting status for multiple centers that are having trouble reporting data. There was discussion about how to confirm AID usage. Arati would like the mapping sheet shared with them. James will share it. Question about pump use as a surrogate for AID? Ori said, “yes, if that is data you trust.” “Newly Diagnosed” within 12 months of first encounter. 25 minutes in there was discussion about dates and counting people.
Discussion occurred regarding clarification about the data that is being collected. Ori adjusted the language of the table requesting data. Dr. O’Malley suggested we provide them with data that we have and share with them to see if they can fill in the rest.
Drs. Mathioudakis, Crossen, and O’Malley will review the definitions this week and data collection will begin soon.
December’s Scheduled Presenter: Katie Noland from Children’s Mercy Hospital.