May 15, 2026

• Drs. DeSalvo, Fogel, and Broome will be in attendance  

Texas Children’s Beta Cell Preservation Smart Form 

• Discussion centered on the Texas Children’s smart form and related workflows.

• The Turbocharger package in Epic was reviewed.

• Kelly will provide a “how-to” guide; Dr. DeSalvo will share it with the group.

• Dr. DeSalvo walked the group through the smart form. 

Form Design Notes 

• Date fields are calendar-based to ensure standardized and accurate data entry.

• “Known” vs. “N/A” status was considered confusing; recommendation to revise to “Known” vs. “Unknown.”

• All fields are discrete data elements captured within Epic. 

Questions & Discussion Points 

• Intended Population: The form is not intended for the entire Type 1 Diabetes population. It is specifically designed for a screening/staging program. 

• Form Functionality: The form serves as an ongoing touchpoint and can be updated whenever the patient is seen. 

• Recommendation to add “No family history” as an option under family member history instead of leaving it unselected. 

• For family history marked as “Other,” the group agreed to avoid collecting PHI and simply record “Other.” 

• Clinical Workflow: The form is designed for clinicians already performing T1D screening in high-performing centers. Detailed staging guidance should not be embedded in the form; staging decisions should remain clinician-driven and aligned with ADA standards. 

Data & Staging

• Data will display similarly to a flowsheet, preserving historical entries rather than overriding them.
• Users will be able to view Stage 1, Stage 2, and Stage 3 dates.
• Stage 3 corresponds to the diagnosis date previously discussed for T1DX inclusion criteria.
• If a patient regresses, users can go back and override the original stage date.
• However, patients generally do not regress 

Texas Children’s Registry & Dashboard 

• Texas Children’s maintains a separate registry for screening patients. 
• A data specification for this registry will be shared with the group. 

• Provides a high-level overview of data collected from the smart form. 
• Reports can also be generated from the dashboard. 

• Dr. DeSalvo can make updates to the TCH system. 
• The version demonstrated during the meeting recently went live. 
• Future changes would require organizations to re-adopt the Turbocharger package; updates will not occur automatically. 

• Add a yes/no family history row above Row 6. 
• Laura can rename the AABs. 
• James will share his template with the group. 

• Clarify the time investment required for Turbocharger package installation (question for Kelly from Texas Children’s). 
• Once installed, the package remains installed. 
• Ensure the form is reviewed carefully during Tuesday’s call, particularly with the adult representative attending. 
• The new screening and monitoring elements that will be incorporated into the spec will be added to a special project sheet and will not be released at the same time as data spec 040