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May 8, 2026

T1DX-QI Clinical Leadership Committee Meeting Minutes 

May 8, 11am-12pm EST 

Participants: Francesco Vendrame, David Broome, Dan DeSalvo, Risa Wolf, Nestoras Mathioudakis, Patrick Hanley, Liz Mann, Manu Kamboj, Naomi Fogel, Shideh Majidi, Jody Grundman, Malek El Muayed, Anna Neyman, Heba El Ayash, Sowmya Krishnan, Nana Jones, Alissa Guarneri, Andrea Mucci, Georgia Davis, Grace Kim, Tamara Hannon, Meredith Wilkes, Emma Edmondson, Siham Accacha, Kai Jones, Vana Raman, Meenal Gupta, Monica Bianco, Abha Choudhary, Andrew Welch, Betul Hatipoglu, Jason Ng, Jenise Wong, Jacqueline Lonier, Liliy Chao, Mili Vakharia, Gwendolyne Jack, Lauren Golden, Carol Levy, Janine Sanchez, Carrie Schulmeister, Marina Basina, Nicole Rioles, Alyssa Cabrera, Claire Rainey, Timothy Bol 

Slide deck: https://t1dx-qi.t1dexchange.org/wp-content/uploads/2026/05/May-Clinical-Leadership-5-8-26-Final.pdf  

Recording, Passcode: dPUF+0gn  

Welcome and Introductions (Francesco Vendrame, MD, PhD)

Updates from the Coordinating Center (Nicole Rioles, MA; Claire Rainey, BA)

Publications 

  • Strong start to 2026 — thank you all for your contributions. 

Plans for ADA Scientific Sessions 

    • Please RSVP by May 21 
  • High-level overview of ADA presentations provided. See presentation slides for additional details. 

 

November Learning Session 

Engagement Feedback Results 

  • How can we increase the value of the QI Portal? 
  • Portal Summaries 
    • Discussion around providing monthly portal summaries (e.g., center rankings by metric through monthly extracts). 
    • Consideration of whether summaries may be more useful on a quarterly basis instead of monthly. 
    • Recommendation that communications include an educational component, such as: 
      • Step-by-step guidance on how centers can review their own data. 
      • Instructions for comparing center-level data with collaborative benchmarks. 
  • Password Change Requirements 
    • Discussion about spacing out password reset requirements for users. 
  • Data Mapping and Visualization Challenges 
    • Feedback that data mapping continues to be a barrier. 
    • Some centers continue to struggle with generating graphs and effectively using their own center data. 
    • Participants noted they are still not maximizing the platform’s capabilities. 

 

Committee Changes 

  • Thank you to Drs. Vendrame and Demeterco-Berggren for their leadership and contributions to the Clinical Leadership Committee.  
  • Announcement that the Data Governance and Data Science committees will merge after June 1. 

 

Current Project Updates 

  • BPA Updates (Presented by Drs. Mathioudakis and Wolf)
    • The group has reached a point where analysis of the BPA’s impact can begin. 
    • Goal is to increase AID adoption and reduce disparities. 
    • Early data suggest narrowing gaps and meaningful progress toward equity goals. 
    • Discussion around minimizing BPA fatigue. 
    • Clarification that the BPA will not fire for patients already using devices. 
    • Interested centers should reach out to Dr. Mathioudakis and Wolf directly 
      • Particularly for the Epic build 

White Paper Updates (Drs. Broome and DeSalvo)

  • Updates provided regarding the white paper and publication in Endocrine Practice. 
  • The white paper is intended to serve as a practical “playbook” for addressing common questions. 
  • Participants were encouraged to share the document broadly with colleagues. 

White Paper Links 

SmartForm Updates 

  • SmartForm described as a “turbocharger package” within Epic. 
  • A future how-to guide will be developed for SmartForm implementation and Epic integration. 

Breakthrough T1D Focus Groups (Alyssa Cabrera, MPH)

  • Pediatric-focused initiative. 

Additional Opportunity 

  • Potential follow-up survey regarding DMT experiences. 

 

Priorities for 2026–2028 (Group Discussion Facilitated by Francesco Vendrame, MD, PhD)

Funding and Sustainability 

  • Importance of securing ongoing funding and grant support for collaborative projects. 
  • Breakthrough T1D identified as a strong potential funding source. 

Dissemination and Publication 

  • Continued emphasis on disseminating and publishing T1DX-QI results, including longitudinal data analyses. 

Mentorship 

  • Desire to create additional mentorship opportunities across the collaborative. 

Health Equity 

  • Commitment to ensuring health equity remains foundational to interventions and outcome measures. 

 

Data and Infrastructure Priorities 

Data Mapping 

Key Questions 

  • How can data mapping become easier and more sustainable? 
  • How can data measure definitions be easier for clinics to implement and adapt to? 
  • Can we negotiate conversations with Epic (Dexcom, Abbott, Tidepool, Glooko, etc) to have better diabetes infrastructure in their EMR?  
  • How can we integrate diabetes device data into EMRs and our data specification more easily? 

Challenges Identified 

  • Ongoing changes in data capture methods across systems. 
  • Limited IT resources and funding at many centers. 
  • Need for approaches that reduce burden on IT professionals. 

Potential Solutions Discussed 

  • Considering centralized source data approaches. 
  • Exploring crowd-sourced solutions for data support. 
  • Developing lighter-lift implementation strategies. 
  • Increasing collaboration and advocacy efforts with: 
    • ADA 
    • Helmsley 
    • Epic 

Platform Integration 

  • Discussion about understanding which centers currently have — or are working toward — integration across different platforms within Epic. 

Additional Note 

  • Approximately 95% of T1DX centers use Epic. 

 

Next Meeting: Friday, September 5, 2026, 11:00 AM – 12:00 PM EST

T1DX-QI

T1DX-QI

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