October 10, 2024

Diabetes Distress Meeting Minutes, 10/24/2024

What have we done

Assessment the current landscape of Diabetes Distress Screening (T1DX-QI Annual Survey)
Group selected screener tools
Clinics implemented screening in practice. First in paper and then transitioning to EMR and MyChart, etc.
Adding to EMR
Reporting: group began tracking rate of screening in August, 2024, using Smartsheet
Providing peer motivation by sharing practice/systems/EMR changes

What have clinics hoped out of the group

Identify what we plan to do with positive screens
Agree on what can we do as a larger group
Proposing SMART Aim: by July 2025, for centers data mapped, achieve an annual screening rate of 12 y/o and up, screen 70% of PWD population.
Reminder: “definition” provided in SmartSheet is tracking number of people screened per month. When screening tools get pulled from Epic, we will be able to analyze more granular data.

Nationwide

Doing well with screening
Still working on incorporating into Epic
Trying to expand to 8-12 age group
Trying to collect data re: date of dx and A1c to see impact of duration, outcomes, etc.
Hiring another psychologist
Trying to screen annually
Total scores did not show a lot of distress

Indiana University, Riley Children’s

Can see patterns
Next steps: look at parent measures to understand how kids are coping
Fair amount of screener fatigue
Parents need support
Measures change a lot, week to week and month to month
Have been able to connect 1-1 family with social worker- families appreciate this
Piloted group education and mindfulness stress reduction
IU will transition to Epic in 2026/27

Michigan Adults

Look at what is clinical meaningful with the score results

Boston Medical Center

Seattle

Doing RCT for Transition clinic and check in visits for 16 y/o up, incorporating diabetes distress screener and referral for adolescents in the RCT.
Screening process and documentation continues