January 2025 Pediatric Call
January Pediatric Collaborative Call Meeting Minutes
January 30, 2025 11:00-am EST
- Welcome & introductions, Nicole Rioles, MA and Osagie Ebekozien, MD, MPH, CPHQ
- Clinical center presentations
- Collaborative Updates
- SUNY Upstate, David Hansen, MD
- Nemours Children’s Hospital, Patrick Hanley, MD, MSHQS
- Texas Children’, Daniel DeSalvo, MD; Sarah Lyons, MD; Selorm Dei-Tutu,MD
- Updates from the Coordinating Center
- Thank you and farewell to Dr. Ebekozien, who is departing the Collaborative after seven years on February 4th. He is excited to continue his work in the diabetes space in a new venture and is excited to share more information with everyone soon.
- UPMC is seeking a national sample of pediatric diabetes centers/practices about their current processes for working with schools. Interviews are expected to last 30-60 minutes. Please outreach the PI, Dr. Chistine March, at 412-692-9156 or Christine.eklund@chp.edu
- Please submit Statements of Work with T1D Exchange; all invoices for deliverables completed on or before December 31, 2024, must be invoiced on or before March 1st, 2025, 5pm EST. Payment for invoices received after 3/1/2025 will be forfeited.
- Consult your SOW for details.
- Include terms/timelines of deliverable, PI name, and amount in your invoice
- Email invoice to: Linda Crasco linda.crasco@t1dexchange.org ; Rene Weathers rweathers@t1dexchange.org ; T1D Exchange Accounts Payable: t1dxap@t1dexchange.org
- Questions about invoicing can be sent to Nicole Rioles nrioles@t1dexchange.org
- Clinic Presentations: SUNY Upstate, David Hansen, MD
- The Diabetes Resources Education and Management Support (DREAMS) Program is designed for adolescents with a high risk of diabetic ketoacidosis (DKA).
- Hansen provided an overview of the changes they made to their scheduling and total number of visits in the program to improve outcomes.
- Despite some setbacks with their first cohort, they changed the number of visits for a second cohort, added a psychologist, involved social workers, changed eligibility criteria, eliminated return to usual care, and created a new intervention chart in Epic to improve tracking. All of which contributed to reduction in A1c and DKAs.
- Next steps were shared, such as analyzing outcome measures data, soliciting feedback from participants, and continuing to address barriers with new interventions.
- Nemours Children’s Hospital, Delaware, Patrick Hanley, MD, MSHQS
- Dr. Hanley provided an overview of their center, as they are new to the Collaborative.
- A live session of Epic was used to demonstrate the center’s version of SmartForm, which is a summary of all diabetes-related information for patients.
- This Smartform is currently specific for Nemours and at the moment cannot be shared, but the capability to share may change in the future.
- The information can then be exported and analyzed using their homegrown tool for reporting on Epic data, which is possible for other sites to duplicate.
- Hanley focused on two reports, Inactive Patients and SmartForm Utilization Report.
- The center managed to lower the number of patients who had not been seen regularly and did not have appointments scheduled. They were able to eliminate patients who had transitioned out of the center and set up a process to contact the rest in order to get them back on track with regular visits scheduled.
- As a result, changes implemented include staffing a core team of a diabetes NP, QI specialist, 2 endocrinologists, a medical student, and adding in a patient questionnaire, documenting CGM use reliably, creating and distributing a CGM tipsheet, automatic billing to document CGM usage in SmartForm, and collecting feedback.
- Texas Children’s Diabetes Care, Daniel DeSalvo, MD; Sarah Lyons, MD; Selorm Dei-Tutu, MD
- Dr. DeSalvo provided an overview of their multiple centers and patient demographics.
- Dr. Lyons provided a high-level overview of their organizational structure, targeted initiatives over the past decade, and reviewed their Diabetes Scorecard.
- Dr. DeSalvo then returned to introduce the SIT Down T1D program which was a collaboration between multiple centers in the Collaborative to screen for diabetes.
- Fellow collaborators were Lurie Children’s Hospital of Chicago, Children’s National Hospital, University of Indiana, Rady Children’s Hospital, and University of Florida.
- A SmartForm was created to better manage patient populations, telemedicine visits were incorporated, and siblings can be screened because of this initiative.
- ROCKET T1D was launched to fill the gap between insured and publicly insured patients and to empower youth and their families to leverage emerging technology, improve diabetes self-management habits, and achieve their self-care goals to thrive with T1D.
- There are three components of the project, Remote patient monitoring, Predicative Analytics, and Timely Interventions.
- Dr. Dei-Tutu provided a high-level history of the RI-DKA tool used for the second component: Predictive Analytics. The team was led by a psychologist and has been active for over 1o years. A Diabetes DKA Risk Score in Epic is generated by observing A1c, number of DKA Encounters in the past 2 years, and type of insurance.
- These tools have been successful in lowering DKA events and A1cs over the past year.
- Dr. Dei-Tutu also briefly touched on their Community Health Worker Program which is improving appointment management and communication with the care team, access to healthy food, navigating barriers to access in diabetes technology, applying for public benefits and supporting transition to adult care providers.
Next meeting: Combined Collaborative Call Tuesday April 15, 3:30-5pm EST
Link to Recording:
Passcode: Wf#mQ5T&
This Post Has 0 Comments