March 2022 Combined Collaborative Call

20220324 CollaborativeCall

Pediatric and Adult Collaborative Call Meeting Minutes

March 24, 11:00-12:30pm

• Welcome & introductions
• Updates from the Collaborative
  • We currently have 45 Participating Clinics, 29 Pediatric & 16 Adult
  • Welcome two new clinics
    • Washington University PI: Alexis McKee, MD
    • Billings Clinic PI: Haleigh James, MD
  • Welcome Cleveland Clinic
    • Adult Clinic PI: Pratibha Rao, MD, MPH
    • Pediatric Clinic PI: Andrea Mucci, MD, MASc
  • Website Updates
    • T1DX-QIC website will be launching 4/4/2022
    • Password protected space that will take place of Trello

• Monday May 16^th PI and Patient/Parent committee strategy session: Virtual Meeting
  • Agenda will be shared in April
• Learning Session: Monday – Tuesday November 7-8^th November Learning session in person Miami Florida
  • RSVP links to be sent in May
  • Agenda to be sent in August
• Publications
  • 11 ADA Abstracts 1 Oral and 10 Poster
  • 7 ATTD Abstracts 2 Oral and 5 Poster
  • 4 Manuscripts for Q1
    • https://www.mdedge.com/jcomjournal/article/251351/covid-19- updates/differences-covid-19-outcomes-among-patients-type-1
    • https://onlinelibrary.wiley.com/doi/abs/10.1111/pedi.13328
  • Portal
    • New content uploaded into the library
    • Portal log in: https://qi.t1dplatform.org/auth/login
    • https://www.youtube.com/watch?v=iZCe48_MtsE 

• PWD/Parent Advisors Perspectives
  • Emily Dewit, CMH- emotional support, logistical tips (glucose gel example), resources, firsthand experience, establish connections, connect within same school system, 504 plan, POPs (parents offering parent support)
  • Emily Coppedge, Cornell- surveys to find out what family wants, keep database of resources, teen groups
  • Jeff Hitchcock, Friends for Life- biggest family focused type 1 event, important to be with others

• Words that Empower – Jane Dickinson
  • Builds trust
  • Breaking the cycle: Natural and factual, Person-centered
  • Eliminate control, use thinking, engagement
• Ways that your patients can be involved
  • Invite them to participate in QI Work
  • Invite them to join the Patient Parent Advisory Committee
  • Invite them to join special projects
  • Invite them to join the Health Equity work
• CHLA, Cynthia Muñoz, PhD and Brian Miyazaki, MD
  • Depression screening Process
  • PHQ9 modified for adolescents
  • Fishbone for barriers
  • Teen Power: You are not alone
  • Group goals: To help youth with T1D and their families adaptively cope with the many challenges associated with managing their diabetes

• T1DX-QITrello boards
  • https://trello.com/b/nEOC9igu/collaborative-calls
  • https://trello.com/c/7P9XcKBY/77-key-driver-diagram-july-2021
  • https://trello.com/c/0hlPxn2G/10-phase-measures-2020-2022-for-smartsheet- reporting

Next call: Adult: Tuesday, July 26^th, 3:30-5:00pm EST

Pediatric: Thursday July 28^th, 11:00-12:30pm EST

*Some of the QI meetings were deleted from the calendar So that we can connect. The invitations to our Zoom account. New invitations with Zoom link will be sent out for the remaining Collaborative calls for 2022.

Link for Recording: https://us02web.zoom.us/rec/share/HYCSpNCWDiXGt3N-

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(Passcode: yj$Qg&21)