April 2023 Meeting Minutes
April Parent Patient Advisory Committee Meeting
4/12/2023
Attendees: Jeff Hitchcock, Jessica White, Stephanie Wurtz, Craig Bobik, Britaney Spartz, Jeniece Ilkowitz, Amy Ohmer, Katie Hester, Holly Hardison, Nicole Rioles, Jane Dickinson
Agenda:
- Brainstorm sick day guide dissemination ideas
- Discuss creating a resource guide to help clinics engage PWD and their families into care team QI projects
- Discuss November 2023 Learning Session
Sick Day Guide:
- Share at Friends for Life (print packet and add guide QR code to magnet)
- Translating: check with local university for students who could support translations
- Jeniece willing to help with translation
- Send sick day guide through T1D Exchange Socials
Resources engaging PWD:
- Ask those who are already involved how they were approached
- A guide for best practices
- Reach out to clinics who do engage and request that we use their best practice examples to make a guide
- Look at roadmap guides
- Create a list of how other clinics engage families
- Ask clinics to think of how to engage all family voices
- Ask at each visit so that everyone is represented
- Make questions simple/fast so that it doesn’t take any time (suggestions: votes with smiley faces, tokens, 1 yes/no question, creative physical spaces where comments/suggestions can be added.)
2023 November Learning Session:
- Create 2 Abstracts
- 1 aimed at clinics
- 1 aimed at families/PWD
Other Resources we can make:
- A 1 page overview sheet would be helpful to make (FYI)
- What is diabetes?
- Quick fact sheet
- Relationship guide
- Ages and stages of life (adolescent, Young adult, adult)
- Children’s mercy
- Diabetes Passport
- Managing Sleep with diabetes
- How to co-parent a child with diabetes after divorce
Link to Recording:
Passcode: u2+^0H%Q
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