January 24, 2025

Screening for Stage 1 and Stage 2 Diabetes
Meeting minutes, Jan 24, 2025

Slides from meeting

Attendees: Trevon Wright, Lauren Culbreth, Laura Levin, Sarah Lydia Holly, Emma Ospelt, Dan
DeSalvo, Don Buckingham, Guido Calderon, Carla Demeterco, Laura Jacobsen

• Review of project aims and timelines
• Qualtrics: screened, positive (to know who is being monitored). Smartsheet is
  everyone, including people who screen negative. Need all confirmatory tests.
• Interventions happening now
  • Texas Children’s
    • New referral process for the sit down T1D clinic.
    • Changed name to “Pre Symptomatic screening for type 1 diabetes.”
    • Simplified to one click; includes questions about autoimmune
      conditions and family history.
    • Added nutrition component to the clinic.
    • General advice is provided to avoid concentrated sweets.
    • Individual meetings with a dietitian are available on a case-by-case
      basis.
    • First Texas Medicaid patient and first Spanish-speaking patient
      received Tzield.
    • Challenges with weekend infusion center options, but some batching
      of patients has been successful.
    • Recommendations against retesting glucose before infusion to avoid
      delays.
  • Children’s National
    • Transitioning to EPIC system.
    • Currently still working with Cerner; progress made on a power form.
    • Finalized handout under review by patient and family education team.
    • Streamlining workflow with administration support.
  • Lurie
    • Created a flyer for clinics and shared with other providers.
    • Developed a smartphrase with testing instructions and ICD codes.
    • Engaging with GI and other departments for collaboration.
  • University of Indiana
    • Optimized referral process for early-stage type 1 diabetes clinic.
    • Fellow’s triaging referrals using a decision tree
    • Implemented T1D encounters and screening discussions.
    • Conducted 41 T1D encounters with 73% documenting discussions
      about screening.
    • Expansion of in-person visits with a new nurse practitioner.
• Discussions on Screening challenges, Communication and coordination with
  family’s and clinical teams, and clinical trials.
• Trevon will reach out to participating centers regarding focus groups.