May 14, 2024

T1DX-QI HCT Workgroup_Core Element #3_Pediatric (002)

Health Care Transition Working Group

May 14, 2024

Attendees: Faisal Malik, Sarah Corathers, Holly Hardison, Don Buckingham, Amanda Plamer, Anita Peoples, Mai Tran, Beth Edwards, Inas Thomas, Amy Ohmer, Sarah Rosenheck, Kate Weaver, Deborah Plante, Abha Choudhary, Malak Abdel-Hadi, Jennifer Iyengar, Jennifer Pfeiffer, Manu Kamboj, Shivani Agarwal, Michael Greenberg, Vana Raman, Meredith Wilkes, Ines Guttmann-Bauman, Katie Craft, Jordan Ross, Farahnaz Joarder, Andrea Mucci, Monique Moher

Objectives:

Review plan to use Got Transition’s Six Core Elements of health care transition (HCT) to guide T1DX-QI HCT efforts
Define “Transition Readiness” core element for pediatric diabetes care
Review T1DX-QI annual survey data on core element #3 for pediatric diabetes care
Share successes and challenges with assessing and improving HCT readiness in emerging adults
- Some centers are combining tools and picking questions and best practices from different tools
- Johns Hopkins using READDY
- OHSU using a center created tool
- Nationwide Children’s organization wide survey
- UCSF Peds TRAiD (Transition Readiness Assessment in Diabetes)
- Nemours BUILT (Building up Independent Lives for Teens)