April 26, 2024
April 2024 Clinical Leadership Collaborative Call 4.26.24
Clinical Leadership, Meeting minutes, 4/26/2024
Attendees: Devin Steenkamp, Todd Alonso, Carla Demeterco-Berggren, Georgia Davis, Kristina Cossen, Neha Vyas, Shideh Majidi, Andrew Lavik, Francesco Vendrame, Osagie Ebekozien, Patrick Hanley, Carol Levy, Nicole Rioles, Donna Eng, Anna Neyman, Alissa Guarneri, Marina Basina, Manu Kamboj, Daniel DeSalvo, Kristi Kulasa, Trevon Wright, Allison Smego, Faisal Malik, Holly Hardison Grace Nelson, Ruth Weinstock, Cynthia Herrick, Laura Jacobsen, Mary Kellis, Jenise Wong, Liz Mann, Abha Choudhary, Laura Golden, Vana Raman, Janine Sanchez, Alissa Roberts, David Ziemer
- Thank you to all past co- chairs and welcome to new co-chairs of the working groups, who will begin their terms in June 2024. They include:
- Clinical leadership: Carla Demeterco-Berggren from Rady Children’s and Francesco Vendrame from University of Miami
- Data Science: Ryan McDonough from Children’s Mercy and Nirali Shah from Mount Sinai
- Data Governance: David Hansen from SUNY Upstate and Georgia Davis from Grady Memorial
- Publications: Stephanie Crossen from UC Davis and Halis Akturk from Barbara Davis
- People With Diabetes Advisory Committee: Jeniece Ilkowitz from Hassenfeld Children’s and Emily Coppedge from Weill Cornell
- QI Champions: Blake Adams from Le Bonheur and Lydia Holly from Children’s National
- HEAL: Ashley Butler and Selorm Dei-Tutu, both from Texas Children’s Hospital
- International Collaboration Chair: David Maahs from Lucile Packard Children’s Hospital (Stanford)
- Working group updates
- Hybrid Closed Loop
- Aim to increase use by 10% from baseline
- Systems challenges and PWD factors (insurance and personal barriers)
- Creating Prior Auth templates, best practices shared by center
- Group developed a 13-question survey. There is interest in distributing to whole Collaborative. Request made to Clinical Leadership.
- Request: transparency in learning how these devices are working in the real world
- Transitions of Care
- Aim: leverage Got Transition 6 core elements to guide efforts
- Adult centers interested in joining: Stanford, SUNY, and UC Davis
- Local NYC hospitals are communicating transitions across their centers
- Diabetes Distress
- Aim to increase Diabetes Distress Scale screening and incorporating DDS (19+ YO) questions into EMR systems
- Teen Distress scale (PAID-T) also being implemented, 12-18 YO
- Interest from group to see Epic integration, flowsheets, and details on how Michigan Adults has offered MOC credits for the DDS intervention work
- Hybrid Closed Loop
- Monogenic diabetes
- Building a consortium so that there are enough patients for centers to learn, collectively. PREDICT member institutions: Stanford, Michigan, Barbara Davis, Baylor College of Medicine
- Reminders from the Collaborative
- Please join us for the Faculty Breakfast at the 2024 ADA Scientific Sessions in Orlando, FL. Breakfast will be held Sunday June 23rd, from 6:30-9 am EST RSVP (link)
- Upcoming T1DX-QI Conferences:
- 11/11 QI Collaborative conference. Happening over one day. Attendees can plan to fly into Chicago Sunday evening, 11/10.
- ADEPT (Equity conference) Happening 11/11-11/12 in Chicago, following the Learning Collaborative conference.
- Learning Session conference abstracts are now open: Please submit your abstracts using this link.
- Next meeting: Friday September 27th from 11 am – 12 pm EST
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