January 19, 2024

Diabetes Distress Meeting Minutes, January 19, 2024

Meeting Recording

Attendees: Malak Abdel-Hadi, Casey Berman, Don Buckingham, Michelle Coulter, Holly Hardison, Tamara Hannon, Jennifer Iyengar, Nicole Rioles, Caleb Schmid, Alissa Roberts, Devin Steenkamp, Ryan Tweet, Heather Yardley

• Welcome and introductions
• BMC Devin
  • Changing tactics a bit. New focus: screening people who are using CGM less than 25% of time and screening high % users as well to learn more about distress/patterns/habits in these groups.
• Seattle: Alissa
  • Tracking rates- following depression rates 30-40/200 eligible. Making a protocol.
  • Trying to change screening to reach 12 and up (not 13 and up) Challenges with privacy changes/differences
  • Getting and incorporating feedback from PWD
• Oregon: Caleb
  • Mychart questionnaire – trying to update DDAS “rocky” start- not all getting ahead of time
• Nationwide- Heather
  • Screening 13+
  • Hired 2^nd psychologist
  • Rolled out over 2 clinic days. Still using paper and scanning. Next step- handouts for families
• Indiana- Tammy
  • Social worker administers when seeing families
  • Collected 5 (opportunities to grow!) Didn’t want people filling out without good follow up in place
  • Adding to three clinics: transitions, her clinic, and high risk
• UAB- Michelle
  • Doing PAID T in high risk
  • Trying to administer to more
  • Still on paper
• Michigan: Jenny
  • Core questions/shorter, more manageable.
  • Went live in Epic 12/18 and assigned 3 days before visits. If not completed PWD offered ipad to complete in clinic
  • Plans for Joyce to build a dashboard for it
  • Connecting to Patient Experience staff- trying to secure funds for external resources
• NYU Langone- not screening yet- want to learn from others
• Questions asked, suggestions, proposals
  • Asking about PAID T calculating results (Seattle uses score of 44 or greater and it’s automatically calculated.) If manual, challenging for teams. Also important to look at the item level
  • Asking about the literature. The group does not thing that there is broad data available yet on numbers/percentages of people screens for Diabetes Distress: this is an opportunity for us (reminder- we need to track report or we can’t put this data together). T1DX-QI will add DDS to data spec in 2024.
  • Patient not showing a lot of DD
• Updates from T1DX-QI: Nicole shared that the Collaborative will submit a full grant to JDRF in February for funding to support diabetes distress work. We will discuss proposal ideas in the Feb meeting to discuss group’s interest and the direction that the interventions can take. Reminder to please document your screening numerators and denominators into Smartsheet so that we can demonstrate project implantation and progression.
• Next planned call: February 23 from 12-1 pm EST