December 15, 2023

Diabetes Distress Meeting Minutes, December 15, 2023 

Attendees: Kath Barnard, Don Buckingham, Amy Grant, Tamara Hannon, Jennifer Iyengar, Nicole Rioles, Caleb Schmid, Laura Smith, Devin Steenkamp, Ryan Tweet,  

• Kath Barnard joined and discussed the Spotlight AQ tool: https://www.spotlight-aq.com/about If Diabetes Distress Workgroup katharinebarnard@bhrltd.com 
• We welcome Cincinnati Children’s as the newest joining center to the Diabetes Distress Group! 
• Nationwide: Don PAID being used on Mondays and Tuesdays 
• Michigan: Jen rolling out 8 question core- put in ticket to incorporate into Epic 

• Prompt patients every 9 months to complete survey 
• HITS made it mandatory for survey completion 
• Could not talk group into 30 questionnaire so compromised with 8 question screener 

• Oregon- Caleb got the full 30 in MyChart questionnaire/flowsheet. Assigning people ahead of time. Use Spanish version paper and paper for pts not on MyChart 

• Using T1DDAS 
• Scoring and showing results by each question 
• Wants system to auto skip if patients are running late (bc pts may rush) 
• Aggregate reports: want full report of completers and scores 

• BMC Devin 

• Some feedback from patients: telling clinicians that “questions are silly” 

• Cincinnati Laura Smith peds psychologist 

• Cinci has strong history of incorporating PROs 
• Using tablets 
• Implementing the PAID- trialing the short one for parents and teens.  
• Not implementing in Epic yet 
• Focusing on patients on Medicaid 
• Patient not showing a lot of DD 

• Indiana- Tammy 

• Using PAID in social worker visits 
• Collecting when they meet with families 
• Using paper now 
• Use Twizzle software to get PROs outsider of visits. Want to add PAID to Twizzle- but need to wait for request for integration 
• Goes straight to a PDF 
• Hiring another social worker in January 

• Updates from T1DX-QI: Nicole shared that the Collaborative will submit an LOI next week to JDRF for funding to support diabetes distress work. If LOI is accepted, we will discuss proposal ideas with group (in either Jan or Feb meeting) to discuss group’s interest and the direction that the interventions can take. Reminder to please document your screening numerators and denominators into Smartsheet so that we can demonstrate project implantation and progression. 
• Next planned call: January 19th from 12-1 pm EST