October 25, 2023
JDRF project update October 2023
Data Science Committee
Meeting Minutes
10/25/2023
Attendees: Marina Basina, Joyce Lee, Emma Ospelt, Holly Hardison, Anton Wirsch, Maggie Gillis, Todd Alonso, Ann Mungmode, James Dawson, Naomi Fogel, David Lam, Nana-Hawa Yayah Jones, Saketh Rompicherla, Risa Wolf, Mark Clements
Agenda:
- Welcome and introductions- Dr. Lee & Dr. Basina
- Mapped sites and scorecard update- Anton, Maggie, T1D Exchange
- Review data spec change request process map- Emma, T1D Exchange
- Diagnosis stages 1&2 discussion- Dr. Alonso, BDC Peds
- Pregnancy and type 2, pre-conception A1c- Dr. Basina
Mapping Updates:
- 32 sites fully mapped (from 31 sites in Q3)
- 4 in validation phase
- Data completeness scorecards
- Mid-year scorecards have been distributed
Data Completeness Scorecards
- Variables with yellow for meets mapping expectation need improvement.
- Cgm_st_dt only 54% of sites are providing. Only 49% data availability for collaborative average.
- Pump_st_dt only 54% of sites are providing. Only 39% data availability for collaborative average.
- Clarity on start date if patient were to restart
- DKA variables have low data availability (7-15%)for collaborative average.
- SDOH only has 15% of sites providing.
Data Specification Process Map:
- Add request gets feedback to end of request, so members can receive feedback
- Propose adding denied requests to future updates, as they may be more appropriate then
- Providing structured template for the powerpoint requests
- Committee/Requestor also defines what is a “success” for pilot to proceed
T1D Screening:
- Universal Screening?
- New ICD-10 codes?
- Current definition of “Prediabetes” is based on evolution of T2D
- Contracting language to update: those at risk for T1D
- What are sites putting on the problem risk for these patients?
- Are the adding the IMO codes
DM 2, Pregnancy, Preconception
- Risks for mothers: miscarriage, preeclampsia, gestational hypertension, maternal birth trauma, and caesarean delivery, preterm delivery (<37 weeks) x 4 times more often than in non-DM,
- Neonates: LGA (birth trauma), hypertrophic cardiomyopathy, neonatal respiratory problems, and metabolic complications (hypoglycaemia, hyperbilirubinemia, hypocalcaemia, and polycythaemia)
Link to data specs:
Meeting recording:
Passcode: qG94+^ei
Next Meeting: Wednesday February 28th 10-11am EST
This Post Has 0 Comments