T1D Monitoring Project meeting minutes 9/25/23

T1D Screening and Monitoring Project meeting 9/25/23 4:00 PM ET

Participants: Carla Demeterco-Berggren; Laura Jacobsen; Osagie Ebekozien; Nicole Rioles; Ann Mungmode; Emma Ospelt

Minutes:

What are we most looking forward to by participating in this project?

• Sharing best practices
• Determining a workflow
• Advocating for equity (publicly insured patients)
• Prevent DKA
• EPIC integration
• Robust data analysis

Deliverables

• Participate in QI project and update prior work to quantify care team perceptions
• Support development of a change package and published manuscript

Process map sharing

• Rady shared an initial process
  • How do you screen non-patients (particularly adults)
    • They will need to agree to screening and billing setup
    • Or send to TrialNet
  • Over this project, we will explore steps for monitoring in the event patients are not interested or eligible for Tzield
  • Also, ID an algorithm to determine stages of diabetes (has a family dx with T1D, positive for antibodies, etc.)
  • We can invite BDC ASK program to a future call
  • Rady team will invite nurse educators to future calls
• University of FL shared TrialNet process
  • Medscape has a good piece on family perspectives that can share this with group
  • Process exists, and there is room to improve
    • Can take months for TrialNet to share negative result with patient
    • General population is not eligible for TrialNet
  • UF also has a list of ICD-10 codes that can use in place of stages of diabetes (will share with group)
    • Teams can also view list of Quest labs in EMR
  • JDRF guidelines should be available soon
    • We can invite Anastasia O’Neill to the next call to review guidelines
  • Our plan is to start data sharing in January

Next steps

• T1DX team to share meeting minutes and materials on T1DX-QI member website
• T1DX team to share times that work for a late Nov/early Dec meeting, and following Jan meeting

Meeting Recording https://protect-us.mimecast.com/s/iPrZCxkW4XsLpR9CwFoUF