August, 16 2023

Aug 16, 2023 | Diabetes Distress Group Meeting Minutes

Attendees: Malak Adel-Hadi, Casey Berman, Don Buckingham, Jennifer Iyengar, Tamara Hannon, Manu Kamboj, Maggie Gillis, Emma Ospelt, Maggie, Nicole Rioles, Devin Steenkamp,

Notes

• BMC (Devin) shared a general overview of the purpose of the group and the work to date. BMC tested implementing T1DDS and T2DDS in clinical space. Challenges included the front desk had challenges identifying if patients had T1D or T2D at check in. Now using a research staff person to help administer the screeners. Not implemented in Epic yet. Not screening all patients.
• University of Michigan, Adults (Jennifer): Michigan has 4,000 patients with T1D. They are starting pilot, screening people ages 18-23, identified as high need because of A1c and other factors. Began pilot with paper, social worker handing patients the DDS. Was harder by phone. During Covid, they transitioned it to the medical record (Epic). The pilot used the PAID-T for patients in transition orientation when patients are moving from peds to adult care. Future goal: ask someone to build a dot phrase to make process more efficient. Michigan worked with UCSF (Larry Fisher) to implement the screener.
• IU (Tamara) Identified patients through physical signs of distress, such as DKA events. Implemented a QI protocol for kids who have been through repeated DKA. Goal: universal screening in clinic. Challenge of implementation. Only one social worker available in clinic. Need to develop a protocol for MAs for screening workflow. Challenge: balancing all the tasks and incorporating a new one.
• Nationwide (Manu and Malak). Screening QI projects began 7/24/23. First week, screened once per week. Second week, screened twice per week, using paper and pencil. Screened when psych was available in practice. Moving survey into Epic. October will have a new staff person to take on some of this work.
• T1DX (Nicole) There are Diabetes Distress measures in the Smartsheet measures. We ask clinics to report any/all Diabetes Distress tracking in Smartsheet in the coming 0-3 months. Data Science Committee is setting a goal to add Diabetes Distress elements into the Data Spec over the next 6 months so that mapped clinics that have been documenting diabetes distress will be able to report data. We ask clinics that have been able to integrate DDS into EMR to share screenshots to help other clinics incorporate into their own EMR systems.

Action items

• Next meeting : Wednesday September 20th. Each clinic that attends next month will be invited to present (5 minutes each) on their most recent diabetes distress PDSA cycle.
• Clinics should set goals to track diabetes distress and report patients screened (numerator) and patients eligible for screening (denominator) in Smartsheet. If you don’t know what Smartsheet is, talk with your PI or ask T1DX for those details.