July 12, 2023 Meeting Minutes

Parent Patient Advisory Committee

July 12, 2023

Meeting Minutes

T1DX-QI PPAC Committee Meeting, Wednesday July 12 from 11:00-12:00 pm (EST)

• Welcome to new PPAC member, Neilly Ricketts! Neilly lives in the NYC area and receives T1D at NYU Langone
• Creating Guide for Engaging PWD in Everyday Practice
  • Review feedback from the 9 clinics that shared their experiences
    • What else are we missing?
      • Follow up with patients on changes that were made in clinic, impacting culture, team health
      • Recognizing that the representation on committee/patient feedback has a lot of white representation and that using a stipend can help us to be more inclusive and diverse in our representation.
      • Recognition is important, monetary can be a way of showing appreciation but showing appreciation goes a long way. Example: making Patient/Parent Advisors official members of staff team with badges and IDs of the hospital is an effective way of including them in the team
      • Removing bias from a provider and patient side as there are learning from different viewpoints
      • As a patient, it may be seeing the clinic from the side of limitations by administration and from the provider side, it is the reminder of the balance of life and T1D.  Just an example of a million learnings that occur by adding a a new perspective
  • Abstract submission for Journal of Diabetes/learning session
    • Timeline: deadline 7/31
  • Completed guide for Collaborative distribution:
    • Present at learning session
    • Add to Portal and website
• Sick Day Guide in Spanish completed
  • Link to English and Spanish version (thank you Jeniece!) We will add to QI Portal Library. We also encourage Committee members to share with your respective clinics. Jeff suggested designing both versions in A4 (paper) format for use outside of the US.
• Next steps: we will circulate abstract and guide drafts in Google Docs for PPAC feedback and ask for your feedback.

Next Meeting: Wednesday October 11, 11-12pm EST

Link to meeting Recording:

https://us02web.zoom.us/rec/share/x-T9Jzr88aLDFwe2_ueGGSZpK-MypK6S5B_kI6YP25zjupgGpZpZgaaJmDgQK9yX.3EuEWA1sFDx-du7Z?startTime=1689174049000

Passcode: !j48+R5N